After 30 years of working with families, we know we have created a great service that helps families living with a child with a life threatening or terminal illness.

To measure our impact we recently completed a pilot audit amongst a sample of families. Results showed that at referral, 93% of families surveyed were concerned that they were unable to spend quality time together, and had a reduced quality of life. With 98% of families concerned that they were unable to manage their stress. After just six months of Rainbow Trust’s support, every family reported an improvement in their ability to cope.

Iona and Cameron, pictured above, with Swindon based Family Support Worker, Jayne who provides them with sibling support.

“We can talk about what it’s like for us. I’d feel more alone without the groups.” Says Iona, James’ thirteen year old sister.