Aqsa's Story
After Aqsa was diagnosed with a bone condition and a huge strain was put on family life, Family Support Worker Wendy began to support.
Read moreHow Family Support Workers can help
Rainbow Trust Family Support Workers support the whole family including parents, carers, the unwell child, brothers, sisters and grandparents. Support is hugely varied and depends on the needs of the family. Read some of our families stories to find out more about the care we provide.
Sibling Support
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Max's Story
"There are adults always coming for Max, but it’s really nice for Eva to have a friend that’s just for her."
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Jaxon's Story
Hayley and Andy are parents to two-year-old Jaxon, and seven-year-old Jessica. In August 2022, Jaxon was diagnosed with liver cancer.
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Edith's Story
Edith's mum, Sarah, got in touch with Rainbow Trust when Edith’s sister, Bea, started having a hard time dealing with her emotions.
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William's Story
William has undergone two kidney transplants: He has one kidney donated from his mother and one from his father.
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Ellis' Story
Family Support Worker Gina supports Ellis and his family after he was diagnosed with a rare condition called Langerhans Cell Histiocytosis.
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Family Support
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Layla's Story
After Layla’s family were thrown into crisis, Family Support Worker Brodie’s help meant they didn’t have to cope alone.
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Mohammed's Story
Family Support Worker Georgia helps Mohammed's family with the challenges of caring for a seriously ill child.
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Luke's Story
Family Support Worker Monica has helped with Luke’s anxiety and lack of confidence.
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Esme's Story
Alone in a hospital room Carly was told that her daughter may not make it to her fifth birthday.
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Niamh's story
"When your child's sick, you worry about leaving them, but I've always felt really secure with Family Support Worker Michelle."
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Jaxson's Story
Jaxson was diagnosed with leukaemia at three-years-old. Family Support Worker Wendy began supporting the family in January 2023.
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Emily-Rose's Story
'Natalie is just the best. She just makes me feel like I’ve got a friend who understands. I can’t sing her praises enough.'
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Isabelle's Story
Christina and Duncan are parents to Isabelle, Max, and Jack and have been supported by Rainbow Trust Children’s Charity since October 2020.
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Tommy's Story
'As a parent, you’re living it day-to-day, and having an extra person to advocate for you and back you up, is just the best thing.'
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Kahmari's Story
"Just having Wendy around playing with Kahmari and keeping him entertained whilst I have a break has really helped."
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James' Story
James was born with sepsis and a number of serious and complex needs due to a brain haemorrhage that caused a significant brain injury.
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Finley's Story
'There’s someone there for you to talk to, who’s willing to help and is just really adaptable. Laura understands what it’s like'
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Ethan's Story
'I can talk to Michelle about anything, and Katlyn loves her too. Michelle will come over and spend time with Ethan – it’s such a big help.’
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Teddy's Story
‘I just so look forward to when Emma comes. We call it a ‘Rainbow Day.’ I knew I’d be able to get out of the ward and get away.'
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Mya Ela's Story
‘Jaimie has been my absolute rock to be honest. I would feel so lost without her. She has made such a big difference to our lives.'
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Zack's Story
"The time Zack spends with Kate helps him to manage and deal with what he is going through."
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Transport Support
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Alexander's Story
Family Support Worker Jaimie is providing emotional support, helping Emma cope with the enormity of her loss.
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Luke's Story
Family Support Worker Monica has helped with Luke’s anxiety and lack of confidence.
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Teddy's Story
Kat tells us of her experience dealing with Teddy’s rare cancer and the support they have had from Family Support Worker Jayne.
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Ellis' Story
Family Support Worker Gina supports Ellis and his family after he was diagnosed with a rare condition called Langerhans Cell Histiocytosis.
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Neonatal Support
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James' Story
James was born with sepsis and a number of serious and complex needs due to a brain haemorrhage that caused a significant brain injury.
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Bereavement Support
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Artem's Story
Dealing with loss and grief far from home: how Family Support Worker Lilia supported Artem’s family when the unthinkable happened.
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Erhun's Story
From practical and emotional to bereavement support: how Family Support Worker Shelly continues to support a family in crisis.
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Alexander's Story
Family Support Worker Jaimie is providing emotional support, helping Emma cope with the enormity of her loss.
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Riley's Story
‘I wanted to walk to where Stanley’s buried, but I didn’t want to go alone. Jo came with me, and we just talked about Stanley.’
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Maddison's Story
Rainbow Trust Family Support Worker Merissa started supporting the McVety family in 2019 after Maddison was diagnosed with cancer at age 13.
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Hospital Support
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Bea's Story
“Monica knows we worry the second we leave Bea, so she keeps us up to date with everything that is going on.”
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Elodie's Story
Elodie was diagnosed with a rare genetic disorder, Edwards’ Syndrome. Rainbow Trust has become a vital source of support for the family.
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Oscar's Story
Emma shares her family's experience caring for a seriously ill child, and the support she received from Rainbow Trust Family Support Worker
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Jakob's Story
Jakob, who has an extremely rare illness, ‘rings bell’ after transplant thanks to his six-year-old donor sister.
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Ellis' Story
Family Support Worker Gina supports Ellis and his family after he was diagnosed with a rare condition called Langerhans Cell Histiocytosis.
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