Today there are an estimated 49,000 children and young people in the UK living with a life limiting or life threatening condition who may require palliative care (University of Leeds, 2011*). Many of these children and their families are able to cope or are not in a ‘crisis situation’. However, thousands of families have to face the very real possibility that their child may die and struggle to cope on a day to day basis.
Rainbow Trust supports these families who have a child with a life threatening or terminal illness and are in the greatest need and it is our intention to expand geographically and introduce new services to meet this total demand.
*Based on the 2012 research report by the University of Leeds (Fraser et al) which is the most recent and most comprehensive data source for the children’s palliative care sector.