“I am 13 and have Spinal Muscular Atrophy which is a rare neuromuscular disability. This means that the signals from my brain don’t get to the muscles in my arms and legs properly. Consequently I cannot walk and need twenty –four hour support for all of my personal care. I have an electric wheelchair which has a controller that can connect to a computer using Bluetooth, so I can activate and use the cursor on a computer screen with my wheelchair joystick because I can’t use a regular mouse.”

Ben's spot
Hi, my name is  Ben

​Sometimes it’s good to do something fun and also raise funds to support young people who have a life threatening or terminal illness. You may have a brother, sister or good friend who has just been diagnosed or going through treatment and this is a good way to support them and others like them.

Get involved

To complete the subscription process, we'll need to verify your email address. Once you've subscribed, please confirm using the link in the email we send you.