Support for parents
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What we doEmotional and Practical Support
We support families who have a child with a life threatening or terminal illness. Support is given 24/7 and for as long as you need it from the point of diagnosis and beyond
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FAQsWe're there for you every step of the way
We’ll support you from diagnosis and treatment and beyond. This includes helping to organise appointments, explaining illnesses and treatment and supporting you and your family emotionally and practically through this time
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Ask for supportIt's not just the sick child that's affected
We’re there for the whole family. Siblings, grandparents, face-to-face and over the phone, at any time of the night or day
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Practical tipsWe'll also support you through the practical issues
From providing transport to and from hospital and giving you practical tips
It's not just the sick child that's affected
When you hear the terrible news that your child has a life threatening or terminal illness your whole world may feel like it’s falling apart. Rainbow Trust Children’s Charity provides a range of support to parents from diagnosis through treatment and beyond. We support the whole family both emotionally and practically including siblings and grandparents.
Things to know
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Difficult conversations
There’s never a good time to discuss illness or death, but there are ways to ensure children feel they can ask questions and cope with bad news.
Advice on difficult conversations -
Questions children ask
"What can I do to make my brother/sister get better?" Some commonly asked questions from siblings.
Questions from siblings -
How to help siblings cope
“Choice of language and allowing siblings to be involved are key to helping them deal with the fact that their brother or sister is very ill”
Sibling Support -
Unraveling medical jargon
Take a look at our glossary of medical terms to help you and your children unravel the jargon.
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Practical and financial help
There is a range of benefits available for families with a seriously child and you may be entitled to them.
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Preparing for treatment
Preparing a child for treatment or a major operation can be very difficult. Kellie shares her story.
Read more
Here's how your money helps
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Family support
24/7 support, around the country from diagnosis and beyond
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Sibling support
Support for brothers and sisters of very seriously ill children
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Home support
Providing emotional and practical support to families
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Hospital support
Attending hospital appointments
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Bereavement support
Face-to-face and over the phone