Bea's Story
“Monica knows we worry the second we leave Bea, so she keeps us up to date with everything that is going on.”
Read moreFind out more about our work and how BBC Children in Need has helped support us to care and support families with a seriously ill child.
Watch Masud's story
Meet Masud
Eight-year-old Masud was diagnosed with a brain tumour, aged five, in 2019. The tumour was operated on a couple of months after his initial diagnosis, but due to the complexity of the surgery, Masud has been left permanently blind.
Rainbow Trust Family Support Worker Merrissa began supporting Masud six months after this initial operation after the family was referred to the charity by their liaison nurse at the hospital. Masud absolutely loves Merissa’s visits. He is a chatty boy and adores quality one-to-one time with her which keeps him busy and entertained.
Merrissa also talks to him about losing his sight and allows him to talk about his feelings.
Masud still goes to the same school and has coped brilliantly at adapting to life without his sight, but sometimes he gets upset. He feels he is missing out on things he knows he once enjoyed, and he can hear other children having fun and playing when he is outside.
Masud attends medical check-ups every few months. The future is uncertain for Masud but the family remains so grateful to Merrissa for all her continued support.
How Children in Need is supporting Rainbow Trust
Children in Need has been fully funding a Rainbow Trust Family Support Worker since 2014 and currently funds a Family Support Worker in our Greater Manchester Care team.
Hear more from the families we support
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Azaan's Story
"Wendy has been a big, positive change to my life. I know that Raihan has somebody he trusts and that he is enjoying both his time with her
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Cameron's Story
“Shelly also understood what we were going through, and she would look after Fraser for a few hours while we were in the hospital."
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Teddy's Story
"We would feel lost and stuck without Mandy and Rainbow Trust’s support. She is always there, and she takes some pressure away from us."
Read more
What Rainbow Trust does
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Why we help
There are an estimated 86,625 children in England with life-limiting or life-threatening conditions. Thousands of families have to face the
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How Rainbow Trust helps
Rainbow Trust pairs each family with an expert Family Support Worker, giving them practical and emotional support. We support the whole fami
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By supporting us, you are helping us support families who have a child with a life-threatening or terminal illness.
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Find out more about our support
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Support for families
Do you have a child with a life threatening or terminal illness? We support the whole family from diagnosis through treatment and beyond.
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Meet our Family Support Workers
Meet some of the Family Support Workers who enable us to support families caring for a seriously ill child.
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Make a referral
Anyone can refer a family to us provided consent from the family has been given for the referral to be made.
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How you can support Rainbow Trust
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Join our friendly volunteer team and help make a difference to families who have a seriously ill child.
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It is only thanks to your donations that we can give life-threatened children and their families expert support for as long as they need it.
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